St. John's Group Email Jonas update

 
 

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Jonas's Updates


Tuesday, January 31 8:30pm

Posted 21 hours ago
The painful intestinal condition Jonas has is called Neutropenic Typhlitis. You can read more about it here:
http://emedicine.medscape.com/article/183791-overview#1
In a nutshell, his entire large intestine is inflamed and infected. The prescription for care is complete bowel rest. No food by mouth. No food by g-tube. He will be getting all of his nutrition (what little he can) by iv. The less work the bowel has to do, the sooner it can repair itself. At this time there is no need for surgery. Whew. This is still a very serious and delicate situation. It could take days or weeks to get under control. Although it is a very critical condition for a pediatric chemo patient, they feel we've caught it early enough to be confident about his recovery. He has not been in this much pain since he first was hospitalized with cancer and I wish there was more we could do to hasten his recovery.
Thank you for all of your warm words of comfort and offers to be of help. Right now I can't even think of what that might be. For the time being, Jonas primarily needs rest. It hurts him to sit or stand, to lay on his back or to contract his muscles. Once he starts to feel better, I know he would love some company.
- - I was interrupted during writing this by his evening CA (nurse's assistant). I'll paraphrase. She said she was our CA last night but we had all gone to sleep so she didn't get to meet us. She wanted us to know how much she LOVES this boy. He was in such pain last night but was still so full of thank yous and I'm sorrys and helpful behavior...and she wanted us to know what a great kid we have. She went on and on. "My all-time favorite patient! " she said. I had to agree.
It reminds me of an anecdote I have told the kids for years. When you squeeze an orange or put pressure on an orange, you get orange juice out. You don't get apple juice or milk or tea. You can only get out what is there inside. It's the same with people. When the pressure is on, what comes out is whatever is inside. If you have stored up anger and hatred, that's what comes out. If you have stored up kindness and good will, calm and perseverance that's what comes out. No one is perfect, and we are all a combination of our best attributes and our flaws. But if I had to witness what I know about Jonas, his character through this so far says it all.

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9 Message(s)

Posted 6 hours ago
Grace and peace from the Lord Jesus Christ be yours. This is what I pray every time I look out the window, which is a good part of every day. The Bortchert courage and positive thinking is an inspirtation to me. Thanks for allowing me the privilege of being part of your lives.
Love and God Bless,
Jody
Posted 9 hours ago
I think we are going to have to give this boy some more names. I don't think four are enough to match his courage and grace. Please tell Jonas that he is an inspiration to us all and that we are proud to be his friends. Tell him to stay strong and that this setback is only temporary. We hope that by knowing that we are thinking of him and his struggles, Jonas can gain strength.
Sydney, Makenna, Spencer, Christine and Doug Laird
Posted 10 hours ago
Kristen what a sweet, strong, courageous boy you have! Sorry to hear he's in so much pain again. Glad they found out what's going on so quickly. Praying for you all!
Posted 12 hours ago
So glad you caught it early. Our prayers continue for Jonas and your family. And you are so right about whats on the inside. Love you all and hope to get to see you sometime. We were going thru old pictures the other day and ran across a few of the kids all together. We never dreamed where our futures would take us. Please know that your posts are appreciated and read. Jonas is the most awesome kid! Keep fighting!
Posted 19 hours ago
We're so sorry to hear about this setback for Jonas. We're thinking of him every day and sending him hopeful thoughts and prayers for peace and healing.
Thank you for sharing with us the axiom you've taught your kids. I always appreciate your focus on kindness, tolerance and compassion. That you've planted this seed within your children is clear. Jonas is much of a human being. So are you.
All our best,
Melvina, Greg and Sage
Posted 19 hours ago
I agree...he is an amazing kid! He truly was one of those students I would never forget...so sweet and caring!
Posted 20 hours ago
Honey I love you, Jonas and the entire family so much! You are all in my prayers and wishing Jonas a speedy recovery from this set back. I'm here if you need to talk and if there is anything else I can do or send...well..I'm here. Love you!! xoxLinda
Encourage_hug_blue
Posted 20 hours ago
Truer words could not be spoken of Jonas - it just makes me cry that he has to go through all of this - so sad for him - if my wishes could make him well, he would have been long ago...hoping things take an upward swing Love and Hugs to you all
Posted 21 hours ago
Thinking of all of you.
Welcome, angie

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