St. John's Group Email Jonas Update



Jonas's Updates

Saturday, November 19

Posted 24 hours ago
Some times in our lives, we will have pain, we will have sorrow. But, if we are wise, we realize theres always tomorrow. Lean on me, when your not strong, I'll be your friend, I'll help you carry on. For, it won't be long, til I'm gonna need, somebody to lean on.
I spent a good part of the night singing to him to help manage the pain. I usually try to stay positive in these posts, but this has been an especially long night. These two particular chemo drugs he's getting this go-round usually cause the most discomfort. They have always been the tough ones to get through, but this time -with the radiation being administered simultaneously- is just beating him up. He woke up several times in the night crying out that his legs hurt. His head hurt. The nurse tried one drug after another. He begged me to pick him up and carry him to the emergency room. "You don't understand, I feel like I'm dying. You've got to give me something else!" Once all the possible drugs have been given to ameliorate the pain and he is still in pain, nothing is left but breathing, massage, changing bed positions, distractions and music. It seems we start there and finish there. Holding his hand.
Rest your head close to my heart, never to part, baby of mine.

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19 Message(s)

Posted 9 hours ago
I"m so sorry. Each moment your child is in pain feels like an eternity.
Thinking of you both and sending you prayers for peace, rest and comfort.
Posted 14 hours ago
We will keep singing for you, Jonas, from up here. Go, go, go Jonas!!! We'll keep loving, and you keep breathing.
Posted 15 hours ago
Keep going Jonas!!!!!!! You will always be in my thoughts and prayers.
Posted 18 hours ago
Thinking of you and Jonas daily and keeping you guys in my prayers. I'm so sorry it's been so difficult and I pray for his healing and comfort. Much Love, Linda
Posted 19 hours ago
I wish that I could take the pain away. I know how it is to not be able to get comfortable to fall asleep. I have tears in my eyes as I was reading this. Kristin I truly adore you and Jonas. I know it must have been so hard to stay strong. But you know that this too shall pass. And there are brighter days ahead of this. I will keep you in my prayers and I am always thinking about you all. Let me know if there is anything, anything at all you need. You got it.
Posted 20 hours ago
Wishing we could be there to so very sorry you are going through this Jonas...we are all here for you to "lean on" - both of you
Posted 20 hours ago
Jonas this is Big Joey. Just wanted to say hi and that you are in our prayers. We have alot of things planned for you that are in the works. Can't wait to see you, you are in the best state ever and a wonderful facility. stay strong and keep your eye on the prize.
Posted 20 hours ago
Dude- (this is James F.) -I can't possibly imagine how terrible your pain is riht now. All I can say is to hold on with your mom and know that at school, we LOVE you and are always looking forward to the day in April or whenever when you will come back home to the orchestra room. I can't begin to explain how everyone here ADORES you. Hang in there buddy.
Posted 20 hours ago
My heart melts with sadness... stay strong mama, you are the cornertone of the foundation holding Jonas right now... all the rest of us are the rocks behind you keeping you in place. Hugs, Kisses and Love. Kim and the boys.
Posted 20 hours ago
I am so sorry that Jonas had such a rough night and that he was in so much pain. I know it must be hard to watch your baby hurt and feel the helplessness of not being able to make it all better. Praying from relief from the pain for Jonas and strength for both of you!
Posted 22 hours ago
Krisitn so sorry Jonas had such a rough night. Prayers and positive thoughts are coming your way for comfort, healing, and peace.
Posted 22 hours ago
Thinking of you and Jonas today and every day, Kristin. The vision of you comforting Jonas is at the front of my mind. Hugs to you both and your whole family.
Posted 22 hours ago
Stay strong mama! A mother's love like yours will carry your precious boy through his trials and tribulations. Your absolutely amazing Kristin! Love you both!
Posted 22 hours ago
I assure you that it does get better. You ALL have a lot of people for you to lean on...remember that. Sending healing thoughts down south for both of you.
Posted 22 hours ago
I am SO sorry to hear that. It makes me cry just reading it so I can only imagine how hard it is experiencing it with him as his mom. It is almost over...that is the only thing I can think of!
Posted 23 hours ago
Oh, heart breaks for you and your mom. Everything is being killed; the good along with the bad. Hopefully, the bad cells will stay dead and you will have time to mend and cure the living ones. Know that everyone loves you and is rooting for you...
We send our love and want you home soon, healed, to bring strength to all of us. LOTS OF HUGS, The Koshlands
Posted 23 hours ago
Wow. That is so tough to read Kristen. I cant imagine having to deal with something like this, especially with our own kids. Please know that you as well as Jonas, are covered in prayer for comfort, strength and healing. Please tell Jonas we love him and to keep fighting.
Jeff, Lisa, Jeffrey, Samantha Burrow
Posted 23 hours ago
I can only say I am just so very sorry. Feel the prayers of many of us out here who really care. I pray for you daily but today know you are surrounded by love from friends everywhere.
Kay Fox
Posted 24 hours ago
My heart hurts for Jonas. It just is not right that he should have to endure all of this. Be strong, mama. I wish I could be there to hold both of you.
Aunt Lizzie
Welcome, angie

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Jonas has been suffering from intense facial and headache pain
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St. John's Group Email Thank you for donations toward Shower Kit items attached

I've attached a "thank you" to forward along via email.  I have a printed out one displayed in the narthex for folks to see there too!
Sandy Robine