Update on Jonas Borchert: Don Nolte's grandson

 
 
 
Hello again. : )
Thank you to everyone who came out to help fund raise for Jonas at Culver's Night. The restaurant was packed! Thank you to Shelli Cornell and Amy Westacott! You girls are-- The Bomb! (do people still say that?) You are goodness and joy wrapped in enthusiasm. And a Big thank you to Melissa Gouldsmith, Kathy Ryan, Donna Everett, Vicki White, Patty Voss, Debbie Cooper, Becky Morales, Dr. Pragman, and all the many other friends and teachers (I'm sorry to leave out so many names) who helped make this an incredibly successful fundraiser! Between the Culver's Night and the penny drive at school, they made an unbelievably large donation to our family. We thank you for that! We are overflowing with gratitude. Our savings was depleted long ago, and being a self-employed family makes for a greater challenge at times like these. I also cannot leave out the owners of Culvers and Chick-fil-a! Both owners, along with Shelli, Amy and Kathy, all took a PIE IN THE FACE for Jonas in front of the entire Elementary School. It was a wonderful event! Thank you to all the kids who made that possible by bringing in your pennies. And thank you all for your love and generosity. Looks like we have two new favorite restaurants, too!
Jonas has been feeling well enough these past few weeks to get out and mow the lawn, help with his baseball team's practices, and to go to a Royal's baseball game. Thank you to our friend and neighbor, Ryan Snyder, who landed Jonas the opportunity to meet Mariano Rivera before the Royals/Yankees game a few weeks ago. (Jonas's two favorite baseball teams!) Rivera is the #1 relief pitcher in baseball history and is retiring after this year. Last year he was pretty badly injured during a game right here in Kansas City. He could have retired THEN, but he wanted to play one more year and go out on his own terms, not stopped by his condition. Mariano was sharing his story of inspiration and love of baseball with people from the community and listening to folks share their own. Jonas told him about how he loves baseball and that he admires Mariano for his commitment to the sport, such a long career. Joel then told the group about how Jonas was in such pain in the beginning but showed up to his baseball games and just wanted to pitch, begged his coach to let him get just one more batter out. Anyway, several articles hit the newspapers around here and on MLB.com – here is a link to one of them. http://www.kansascity.com/2013/05/11/4230988/never-been-a-pitcher-quite-like.html Mariano gave Jonas several autographed baseballs and took his picture with him. (I will put it up in the photos.) Jonas was on cloud nine! Thank you so much Ryan. You have always been such a good friend to our son. Thank you for this, too.
Another thank you to our Timberlake Homeowners Book Club friends! They meet once a month and always share a big spread of food. We were so delighted when they shared casseroles and salads, cheeses and desserts with us a few weeks ago. Delicious! And you wouldn't believe how handy!!! It made that last week of chemotherapy so much easier for me. Marylin, Leita, Charlotte, and all my other book buddies – Thank you so much.
Jonas has now completed the control phase of his treatment. The initial chemo/radiation are behind us and he has had approximately two weeks off of treatment while his body tries to bounce back. Now we move on to stem cell harvesting. The first part of the harvesting involves getting the stem cells to mobilize from the bones to the periphery so that they can flood the bloodstream with stem cells when the time comes. Unfortunately, that means getting daily shots in the thigh between now and the harvest date next week. (One of the more stressful events in our household-- It is painful for Jonas and we have to give it to him ourselves here at home. Ouch!) It causes bone aches and flu-like symptoms. Not a good feeling in general. But on the flip-side he will harvest two to five million healthy stem cells that can be frozen for up to ten years, should he ever need a stem cell transplant.
Next week he will be hospitalized for the better part of the week. The following week he will have all his scans run again to see how much we have beaten back so far. Then, we march on toward the Clinical Trials. I will post more about that next week.
Hey!! I also hear that there is now an open gym night for Jonas at Dave's Gymnastics! So cool!
Does anyone have the picture of Jonas with Shelli and Amy after their pie in the face? Can you share it with me on FB or something? I want to share it, too.

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9 Message(s)

Posted 1 day ago
Jonas I love your strength. Hang in there! Tell Blair hi from Mrs Utter! Hugs to you and the family.
Posted May 30, 2013 10:49pm
Sorry about those annoying shots Jonas!! We'll be thinking about you and praying for you all next week while Jonas is in the hospital and getting the tests/scans. Thanks for the update!
Posted May 30, 2013 10:47pm
Sending prayers for My Hero and Nephew. Love you Jonas. Love you bunches and bunches.
Posted May 30, 2013 10:46pm
What an awesome opportunity for Jonas. I'm pleased at the outpouring of love for your family. You really are special people. I will continue to pray for Jonas. We love you all.
Rene'
Posted May 30, 2013 10:21pm
Very cool about the baseball opportunity. Keep fighting. YOU will win :)
Hugs and prayers from the Hill family.
PS Josh enjoyed being with Jonas at the Fast and Furious Movie.
Posted May 30, 2013 9:44pm
Hang in there Jonas - you have endured so much and come out on top - keep fighting - you are a remarkable young man!! Find strength in knowing there are so many fighting right along side of you - WE LOVE YOU and WE GOT YOUR BACK!!
Posted May 30, 2013 9:35pm
Saturday, June 8, 2013
6:00pm until 9:00pm
Dave's Gymnastics Factory is hosting a fundraising open gym on June 8, 2013.
Jonas is a Lee's Summit student and brother of an employee at Dave's Gymnastics Factory. He was in remission from a rare form of cancer, but recently found out the cancer is back.
DGF will donate $6 for each child in attendance to Jonas. We will also have a donation basket available. Everyone is invited to come, bring friends and support a great cause!
All regular Open Gym Rules apply. For ages 4 to 12. $10 per child. Parents may watch from the balcony, but may not be in the gym area.
Posted May 30, 2013 9:29pm
Thanks, again, for your uplifting update...the community is behind all the Borcherts because theirs is such an incredible journey. I am very optimistic that a great outcome will evolve, thanks to everyone's efforts and Jonas ' bravery and perseverance ! I saw Jonas a few days ago and was so amazed at how good he looks...his coloring is so much better and he seems stronger. This causes great optimism....and we all hope he goes from strength to strength. The Koshlands send their love to ALL the Borcherts! Marilyn
Baseball
Posted May 30, 2013 9:24pm
prayers are with you Jonas!
Welcome, angie

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Jonas has been suffering from intense facial and headache pain
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