Jonas's Updates
September 26, Monday
Posted 1 day agoJonas made counts today and has been admitted to the hospital for the next three or four days to get chemo. He spent the weekend sleeping late and eating whatever he could get his hands on. The next few days will be lots of interrupted sleep and upset stomach.
Over these last few months, Jonas has not had the energy, the physical capacity or the desire to do anything more that recover from the debilitation and pain from this cancer. I would expect nothing more. As he started to feel better, we looked for things for him to do other than play video games and that might give him something to show for his progress. The ChildLife specialists regularly came by the room offering him a chance to come to their activity room to play bingo or to draw/paint/color something. One day, when he was feeling especially full of gusto, they came by and offered him the chance to make a Duck Tape wallet. Christine Laird was visiting that day andencouraged him to go give it a try. He got pretty invested in it. The wallet is totally functional and kind of quirky!. I have used it ever since. Christine saw how distracting it was for him and promptly went out and bought about a dozen different colors and patterns (you wouldn't believe what is out there). He made a wallet for his dad, a purse for Blaire, a totebag for Brette.... He has actually gotten pretty good at it and has made some wallets to raffle off at one of the fundraisers. I will post some pictures later. They are pretttt cool. Now I think we are ready to get more invested into school work.
Have you seen the movie HOW TO TRAIN YOUR DRAGON? It's a great animated family film. I've heard kids and adults both say how much they love it. It just didn't get much press when it came out. This Wednesday is your chance to get to see it at the theatre! = ) Dickenson Theatre on Douglas Rd on Lee's Summit is having a special showing this Wednesday night at 7pm and the proceeds to be donated to Jonas. How cool is that? Jonas won't be able to be there, but Brette (his big sister) is planning to skype him from the movie so that he can feel connected. Hope you can come.....
Friday Jonas gets an MRI of his head/brain to see just how much that filthy tumor has shrunken and to set up a model for the PT machine. Hopefully, we will have great progress to share with you then.
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Jonas has been suffering from intense facial and headache pain
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