Here's an update for Josiah, the little boy with a tumor on his brain.
My Story
Welcome to our CaringBridge site. We've created it to keep friends and family updated. Nathan has written the background story, and as of now, Amy will be the one updating the journal entries. Josiah will have surgery on October 3rd at University of MO Women's and Children's Hospital in Columbia, MO.
Sunday, October, 28, 2012
Our morning started off pretty slow, but ended in a hubbub of excitement. Josiah got up, had some cheerios, milk in a bottle and some oatmeal. He enjoyed a walk in the wagon and some time in the exersaucer, then was ready for bed again. Nathan and I both laid down for a quick nap as well. The doctor came in and said that all his levels were looking good and he was completely off the medicines they wanted him off of and doing well with that. Then the doctor said to unhook Josiah off of all the machines, and informed us we would be moving out of the PICU today! I took a quick shower and then started getting our things together. Josiah woke up and ate his lunch of mashed potatoes, vegetable soup (the broth made wonderful gravy for him,) corn and carrots. By the time we got him cleaned up and changed, they were ready for him to move. Nathan had left to go pick us up some lunch before we moved, but thankfully his mom was here and able to help. So we gathered up our (many) things and moved upstairs into a regular room. Although Josiah was exhausted from being up so long, he enjoyed the wagon ride, but it took him awhile to settle down to sleep once we got into the room.
While I was back downstairs getting the rest of our things, I met the CCH campus minster and his daughter, who had brought us communion for the day. They helped me gather the rest of our things and by the time we made it back to our room Nathan was there with our lunch. We ate lunch and put away our things. Nathan's sister came up and then my mom brought up our other kids and we all enjoyed playing together. When they all left it took Josiah another while to calm down and sleep, but after some tylenol he did quiet down. Nathan and I decided to take a nap as well; we were both tired, and weren't really sure how we would all sleep tonight. We're going to have a difficult time adjusting to being at home and on a different schedule as well!
I ordered Josiah supper while he was still sleeping, so he would have it when he woke up. The kitchen closes at 6:30, and while there are a few options available up here, thought he would enjoy some hot food tonight. When he woke up he ate and then we went to the playroom to play for a while. He seemed to enjoy the new scenery. He was up for quite awhile this evening, and wasn't really ready to go to bed, but he did finally settle down for the night. We went to bed too.
Our morning started off pretty slow, but ended in a hubbub of excitement. Josiah got up, had some cheerios, milk in a bottle and some oatmeal. He enjoyed a walk in the wagon and some time in the exersaucer, then was ready for bed again. Nathan and I both laid down for a quick nap as well. The doctor came in and said that all his levels were looking good and he was completely off the medicines they wanted him off of and doing well with that. Then the doctor said to unhook Josiah off of all the machines, and informed us we would be moving out of the PICU today! I took a quick shower and then started getting our things together. Josiah woke up and ate his lunch of mashed potatoes, vegetable soup (the broth made wonderful gravy for him,) corn and carrots. By the time we got him cleaned up and changed, they were ready for him to move. Nathan had left to go pick us up some lunch before we moved, but thankfully his mom was here and able to help. So we gathered up our (many) things and moved upstairs into a regular room. Although Josiah was exhausted from being up so long, he enjoyed the wagon ride, but it took him awhile to settle down to sleep once we got into the room.
While I was back downstairs getting the rest of our things, I met the CCH campus minster and his daughter, who had brought us communion for the day. They helped me gather the rest of our things and by the time we made it back to our room Nathan was there with our lunch. We ate lunch and put away our things. Nathan's sister came up and then my mom brought up our other kids and we all enjoyed playing together. When they all left it took Josiah another while to calm down and sleep, but after some tylenol he did quiet down. Nathan and I decided to take a nap as well; we were both tired, and weren't really sure how we would all sleep tonight. We're going to have a difficult time adjusting to being at home and on a different schedule as well!
I ordered Josiah supper while he was still sleeping, so he would have it when he woke up. The kitchen closes at 6:30, and while there are a few options available up here, thought he would enjoy some hot food tonight. When he woke up he ate and then we went to the playroom to play for a while. He seemed to enjoy the new scenery. He was up for quite awhile this evening, and wasn't really ready to go to bed, but he did finally settle down for the night. We went to bed too.
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