[Unable to display image]Jonas's Updates
Thursday, January 12
Posted Jan 12, 2012 8:40pmIn between chemo treatments, Jonas goes to Children's Mercy about twice a week to get blood drawn so that lab testing can be done on it. He does not go to 4/Henson, the oncology floor of the hospital. There is a special hemotology/oncology (hem/onc) clinic that is in a seperate tower of the hospital, accessed by a different set of elevators. Just before the first of the year the Hem/Onc Clinic was moved to a new location down the hall. Let me tell you it is Fan-Tastic! There was nothing really "wrong", per se, with the old clinic. It was adequate. Okay, just barely. The number of kids being diagnosed with cancer and the number of kids who are saved/surviving with cancer is growing and growing and that old clinic was just bursting at the gills with patients. It was old and cramped. The new clinic is ab-so-lute-ly wonderful. First off, there is just no beating new and clean. Mwah! Additionaly, the new space is huge in comparisson. It is clean and quiet and spacious. The layout is so well thought out for privacy and ease of use that I could bore you with details. I can't go on enough about how happy we are with the change. I would say it is easily superior to the MD Anderson pediatric clinic and we are so happy to be in Kansas City at Children's Mercy.
Speaking of other cancer facilities ....throughout the month of December, Jonas heard a local radio station fundraising all season for St. Jude's. While he understood -- and was grateful to them for seeing -- the need to raise money for pediatric cancer, Jonas was wondering why our own radio station doesn't do that for Children's Mercy. Children's Mercy is one of the top (US News and World Report's #32) pediatric cancer hospitals in the nation, and they are the number one pediatric hospital in the tri-state area. If any of you have ever had a child with a critical medical issue -- you know. Your pediatrician will send you immediately to Children's Mercy. We are so very fortunate to have this hospital in our own back yard.
Jonas was there just yesterday. He had to go in to get his labs done and to get an injection of chemotherapy. This round always confuses me because after last week's chemo.... his counts drop and he should be on his way back up, but then he gets this single dose a week later (yesterday) and it seems like he plummets again. The report on his blood was good. No tranfusion needed this week. No platelets. No blood. Not yet. Hopefully we will make it through the weekend.
I wanted to say thank you to Mrs. Gouldsmith and Mrs.Cornell and all who participated in the fundraiser at Woodland Elementary before the break. Jonas is still planning to come see you all soon. He is starting school himself this next week ( his homebound teacher will start making regular visits to our home).... unless the snow makes that impossible. He says that he has his fingers crossed for another snow day for you all tomorrow. = )Send a message
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