Jonas's Updates
Thursday, at his appointment to be admitted, Dr.Hughes showed us the side by side comparison of the old MRI with the new. And that stinking tumor has diminished significantly! Yay! Those images are just the hardest things to decipher, and I understand why it takes years of schooling to read them. It's like looking at a negative of a photo.Everything is shades of black and white: bones, cartilage, soft tissue, canals, sinus pockets, etc, etc. As a layperson, I have never been able to see exactly what tumor's perameters are or how many tendrils it has, or what it actually looks like (which is very frustrating to me). The only thing I have been able to make out is asymmetry: like when there should be two eyeballs, two nasal canals, two maxillary sinuses, and two of each of the other sinuses-, sometimes there was an obvious shadowing over one of the sides making it obvious there was a mass in the way. Well, this time, we almost didn't need a side by side comparison! It looked like almost everything was perfectly symmetrical! i couldn't really tell how much it had receded but the doctor said that they were very pleased and called it substantial. No doubt about it. The poison is working! Science isn't perfect, and we are no where out of the woods yet, but I am so grateful for all the strides they are making in cancer research. Trial and error. Working up new and more successfully proven protocol. Forty years ago cancer was a death sentence for children, but every year more children survive and are living longer and longer. Trust me, no one would put their child through this if there was something better out there proven to work. No one.
Jonas also told the doctor he noticed that they also did a spinal scan and wanted to know why. Dr. Hughes said that, yes it was true, they had. They did it because there was some indication that one of the tentacles showed some play at the skull base and he wanted to make sure it hadn't gotten to the spinal column....and he was pleased to say that it had not. So more good news all around. After our discussion, Jonas was so very pleased to be admitted for more chemo. "Bring it on!" he said. = )
Her doctors in Tennessee wanted to put her in hospice because she is too weak for any further chemo or surgery and they had given up on her.
Please pray for her and her girls who are coming to stay with my daughter for the next week or so until their mom stabilizes, and for all of us who love her.
Thank you
Lynn
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Updates
Jonas's Updates
Friday, October 7
Posted 22 hours agoI had hoped that when I started this next update that I would be journaling about the results of Jonas' MRI, but that is not the case. On Wednesday, Joel flew into town and took Jonas to his doctor's appointment Thursday morning. Before they were able to discuss the MRI results, he had blood drawn (as ususal) to be lab tested for numerous things. It turned out that he was extremely neutropenic. They admitted him to the hospital right away and the focus quickly turned to getting him back to good health. He ended up having three transfusions of blood and one transfusion of platelets before being checked out of the hospital this evening around 5pm.
Thank goodness he rebounded so quickly because his sisters drove down to Houston today to spend the weekend with him before he begins his proton therapy next week. It's a 14 hour drive from Kansas City to Houston. Whew. It made me kind of nervous for them to make that trip all in one shot. Luckily, my mother's sister and her husband, Aunt Sandie and Uncle Jack, live at about the halfway mark, in Tulsa Oklahoma, and were so wonderful to let them stay for the night. They left Kansas City yesterday afternoon and arrived in Houston around 2pm today. Thank you so much, Sandie and Jack! Brette said they got about a half an hour out of town and Blaire cried because she wanted to stay longer with you. She was only pacified when reminded that she was on her way to see her mother.... .whom she hasn't seen for a month and a half. Lol.
Anyway, we are headed to the beach again tomorrow. Jonas wants the girls to see Galveston. Then on Monday he gets readmitted for five days of chemo before he begins his radiation.
Thank you to everyone who attended and participated in the Fish Fry! Debi, Mark and Riley Hartley and all the folks at of the Lake Lotawana Optimist Club. Thank you! I heard that the fish was delicious and that the turnout was fantastic. I wish we could have been there.
The Sonic fundraiser has been cancelled or possibly postponed. The next fundraisers are the Paint-Your-Own-Pottery on October 14th and the Fight the Fight on the Fairway Golf tourney on October 15th.
I will keep you posted as soon as Dr. Hughes gives us a full report about the MRI results. His one brief comment as Jonas was being admitted is that we will be pleased with the images, that they show that the treatment is making progress.
Blaire is going to bed tonight curled up in bed between her mom and dad, with Brette and Jonas chattering away in the dark sharing the fold-out couch across the room. Ah. Life is good.Send a message
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If so, you are invited on Saturday, 10/15, to meet David Paul Britton from "Ministry of Musical Mission and Education" who will present two Saturday afternoon workshop sessions at Immanuel in Saint Charles. He will also lead Fellowship Hall worship on Saturday (5:30 p.m.) and Sunday (10:45 a.m.). Anyone interested in learning more about Worship and / or being in a Praise Team (guitar, bass, percussion, keyboard, vocal) is welcome. The sessions will be held in the Fellowship Hall as follows:
1:00 – 2:15 p.m. "Worship in Spirit & Truth"
From Bach to Rock: Being Confessional Biblical Worshippers
The need for Vibrant Worship In A Lifeless Society
2:30-4:00 p.m. "Praise Team – Work Clinic"
Effective Worship Musicianship
Creating Flow & Continuity in Worship
Voice and Instrument Balance
Music Selection & More
The sessions are free, just contact Al Loesel, Director of Worship Arts at Immanuel, at 636-946-2656 #216 or aloesel@immanuelstcharles.org so we know how many are coming.
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We finally got all the test results back today and know the reason for the nausea and vomiting Her cancer is metastasizing at a fast rate and she now has many tumors around her brain, most small but a few are noticeable in size. This has all changed since the MRI in Aug. They are trying to calm the tumor down with steroids to help with nausea so she can eat. She will start a general round of Radiation Friday to help reduce the size of the cancers causing her to be nausea. We need a real big miracle, so keep those prayers going strong.
Floyd for Ruth
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