Test results came back positive. Paul begins 6 weeks of treatments on Sept 15. Thank you to all for prayers for us. Mary Sue
Mary Sue Toedebusch
Realtor Consultant
Century 21 Luetkenhaus
(636)359-0053 - Cell
(636) 980-2121 Office
[Unable to display image]Jonas's Updates
Sunday, August 28
Posted 5 hours agoJonas has had a relaxing week at home so far. On Friday, he got a special visit from his school counselors, Angie Martin and Jeremy Bonneson. They brought pizza and Ben and Jerry's ice cream!!! Two of Jonas' most favorite foods in the world right now. They also brought cards, gifts, and videos from his classmates and teachers at PLMS. His Team, the Ferocious Felions, made him a big laminated banner, signed with messages of encouragement, which we posted over his bed. He wanted me to tell you all "hello and thanks". He was happy to see some familiar names that will be in his class and was curious to find out who the others are.
Mrs. Dahn, the new music teacher, sent a gift bag of candy, cards, and his choir folder. She and Jonas already have a special connection. She was his first music teacher out at Mason Elementary, her very first (I think) teaching position. He is so happy to see her again! She also sent a wacky set of eyeglasses (so cool that Jonas had Mr. Bonneson take his picture in them so he could show the class how they looked!)
They also brought him books and assignments from his core class studies: English, Math, Science. He wasted no time and immediately opened his math book to see what he could remember from last year. Mrs. Bullimore would be so proud. = ) I didn't think we were going to get his nose out of the book for a while there.
Later in the day, Mrs. Fuches came by to visit with him. She shared her adventures from her recent trip to China. He is still mesmerized by the currency she shared with him. I think he is making travel plans for China already!
Thank you all for coming by and reaching out to him. He loved it!
For the most part, we have tried to keep him secluded to keep him free of infection this week. He goes in tomorrow morning to have labwork done on his blood. If his blood counts are up, he will be approved to get his outpatient dose of chemo. Once that is completed we are off to Texas! That is the plan. ( If for some reason he gets hospitalized, for any number of reasons, then we would put all that on hold... and I don't know exactly when we will leave. = ( But....
We are going to DRIVE! Yikes. That way Jonas and I will have a car while we are there. Joel, Jonas and I will drive down and Joel will fly back. We had looked into AngelFlights and Corporate Angels,which would have been fabulous, but both of those require more advanced notice and flexibility. We don't have much of either. I am VERY nervous about driving that distance (12 or 13 hours) but, as someone pointed out, airflight takes about two and a half hours in the air, with an hour at each airport and an hour travel to and from each airport. So, that's almost 7 hours right there. This way, he can kick back in the car and never have to move until we get there (if he likes). Of course, all this is IF he makes his counts tomorrow.
Christine, Jessica, Amber, Donna, Shawn and Lynda, Amy, Nikki, Alex and Michele, Donna Everett = ), Thank you so much. I know there are so many more people working for Jonas behind the scenes, at school, in our community and across the miles. We appreciate your time and efforts. He thrives because of all the love and support you give us every day. I want you to know that we know that.
A special shout-out to my sweet friend across the miles, Malissia Hands. Thank you, sweetie, more than you know! I miss you and can't wait to see you. I need to get you my new phone number as soon as I get it. You need a Facebook Page! = ) Seriously. Love you. Hug your babies for me.Send a message
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[Unable to display image]Jonas's Updates
Wednesday, August 24
Posted 21 hours ago
Jonas is home from the hospital today and I'm sorry I didn't get that updated sooner! My apologies to Officer Wiley, the PLMS DARE officer, and to the Jordans, and anyone else -- who came to visit Jonas in down at Children's Mercy.
Although Jonas' chemo schedule is one week on, one week off - every other chemo cycle alternates. For example the first, third and fifth cycles are the same and the second, fourth and sixth cycles are the same. I did not remember this and told everyone he would be in the hospital for five days, like last time. In actuality, he had two days of chemo treatments and will get one more later in the week by outpatient. Then, he will have a full week off. All this assuming that he does not go into the hospital for fever, infection, or some other debilitation. So far he is doing fine. This is the round that seems to kick his butt with mouth sores and vomiting. Right now, he is not really doing either, but feels like mud. He is looking forward to visiting with friends later in the week, but right now says, "No thanks" to company.
Karen Atkins tells me that people have donated over 24 cases of formula! Thank you to everyone who is helping with this. We have enough to get us through an entire visit to Houston now. Jonas has been eating quite a bit these last few weeks. He is back up to 94 pounds again. While this is good news, he still needs help putting on weight through the formula, because two steps forward and one step back will just not cut it when we have 30 some weeks of chemo ahead. You all are helping to keep him strong and well-nutritioned. We are pretty-well stocked for now.
Jonas has really been missing his dogs. The Burrow Family was so wonderful to let us stop by to visit with them on Monday morning on our way to the hospital. Their dogs are beautiful and so sweet. Our dogs are one black and one gold and theirs are one black and one gold as well!! It was just so cute to see them as a group. They look like they all belong together: color coordinated, so sweet and happy. Just as soon as we are gone to Texas they can come home. That won't keep Jonas from missing them, but it will let the Burrows get back to a normal dog-human ratio in their home. You guys rock. = )
Officer Mark Wiley came by our house today after making his attemp downtown at the hospital (Ooooo.. again, I'm so sorry). He brought Jonas a special plaque the LS Police, and specifically the DARE unit, had made up for Jonas. It was a to commemorate his strength of spirit and courage in his battle against cancer. He also gave him two special coins, one from both the LS police force and one from the DARE unit, that he can keep in his pocket as touch-stones to remind him that he has entire force of brave men on his side, standing beside him, encouraging him to stay strong. Jonas was so honored. He tried to participate in the Junior Police Academy this summer, but we missed the deadline.... and got cancer instead. This was something that meant a lot to him. Thank you Officer Wiley for seeing that, and to the LS Police for reaching out to him this way. He has the coins in his pocket right now.
Thanks to all the folks bringing us meals. Donna, Amber, Nikki. Jessica. .... Delish!
Paul Morales, Just a great big, Thank You!!! Christine Laird- big thanks to you as well! Susan Murphy--thank you for the duckling therapy. Lol
For now, no visitors. But I will keep you posted as to when he would like some company.
I know I am forgetting something. Much love to you all.
And I will try to do a better job keeping updates. = )Send a message
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| "Can a man hide himself in secret places so that I cannot see him?" declares the LORD. Jeremiah 23:24 Joseph Schexnider has been found. May I tell you his story? In 1984, Joseph Schexnider had been charged with having the possession of a stolen car. That was the beginning of his difficulties, but Schexnider compounded his problems by missing his scheduled court appearance. When the police showed up at his home to arrest him, that's when Joseph Schexnider decided to disappear. He did a good job. He disappeared for 27 years. During that time nobody, not his mother, nor his family knew where he had gone. But now Joseph Schexnider has been found, sort of. As best as anyone can figure out, Schexnider decided to finance his disappearance by robbing the local bank. In all probability that was his intention when he slid down the bank's unused chimney. I ought to say that differently. Schexnider started to slide down the chimney. He made it part way and then he got stuck -- permanently stuck. Joseph Schexnider's mother never reported him missing because she knew the police were after her boy. The family never reported him missing because Schexnider had a habit of leaving town without telling them where he was going, or how long he would be gone. Authorities surmise that 27 years ago Joseph Schexnider, stuck in a bank's chimney, died of dehydration. Knowing that nobody knew where he was, that nobody was looking for him, it had to be a long, a lonely way to die. Of course, there was one Person who knew where Schexnider was. I wonder if during those long hours, were his thoughts ever turned to the Lord? Did he ask for help? Did he pray for forgiveness? Did he receive comfort from the knowledge the Savior wanted to be with him? The Lord alone knows the answers to those questions. Now I doubt that any of us have ever felt as alone as Joseph Schexnider did. Even so, almost all of us have times when we feel alone. Most of us have experienced days, weeks and months when we felt nobody cared about us, nobody was looking for us, nobody would notice if we just disappeared. If you have ever experienced these feelings, I hope you know there is no place where we can go that is too hidden for the Lord not to know where we are. Even more, the Lord who knows, also cares. He who gave His Son to carry our sins and save our souls from eternal damnation always cares. There is comfort in that knowledge we have a Lord and Savior who will always care -- no matter where we are, or in what situation we get stuck. THE PRAYER: Dear Lord, for keeping tabs on me, I give thanks. For caring about where I am and what happens to me, I give thanks. For sending Your Son to save my soul, I shall always be grateful. Now I pray You will keep me safe. This I pray in my Savior's Name. Amen. |
The ninth annual T-3 Men's Retreat is set for Friday-Sunday, September 23-25, 2011. This promises to be another great experience for the men of St John's and other Lutheran congregations in the St. Charles area. In fact, men from all over the metro area have joined this special time in the past. Men 18 years of age or older are eligible and they need not be Lutheran to attend. The retreat will be held at Mark Twain State Park at the Si Coburn Group Camp. This is a beautiful setting for a weekend of adventure and growth. The theme of this year's retreat is "Respectable Sins" and the study times during the retreat will be spent exploring the areas of our lives where we have come to accept less than God might want from us.
The retreat will feature great food and a lot of activities A scramble golf tournament, fishing tournament, trap and skeet shooting competition, and euchre tournament all take place on Saturday morning. If none of these interest you, you may choose to spend time reading, hiking , biking, site seeing, or napping. Prizes are awarded to tournament winners at dinner on Saturday evening. Campfires on Friday and Saturday nights provide the opportunity to get to know others better under the stars. Music is a big part of the camp experience and you will enjoy hearing and singing familiar songs with the 100+ men who typically attend. The culminating worship service on Sunday morning is a special time of praising God for all His gifts to us and a great way to prepare us to return to our homes and lives.
The cost of the retreat is only $42 and this includes meals and a commemorative tee-shirt. Attendees have the option of staying in group cabins or tent camping on the grounds at no additional charge. You can even arrange to stay in a local motel near the camp at reduced rates if you like.
A brochure with all information and a registration form will be available soon in the narthex. You can also register online at www.t3mensretreat.org using PayPal. It is really easy and you can see pictures of the camp and facilities there, too.
This is the year for you to go to the T-3 (trap-tackle-tees) Retreat. Sign up, meet new friends, bring old friends, and join in the fun of growing your faith. For more information, contact Don Hugo at Zion –636 441-7425 ext 246 or home 636 441-9954.
20- Mauch
21- Panhorst
27- Perricone
28- Sweet
September
3- mckenzie
4- Panhorst
10- Perricone
11- Schaumberg
17- Perricone
18- Heitgerd
24- Mauch
25- mckenzie
October
1- mckenzie
2- Panhorst
8-
9- Winn
15-
16- Heitgerd
22- mckenzie
23- Schaumberg
29- mckenzie
30-
November
5- mckenzie
6-PEPER
12-
13-PEPER
19-
20-PEPER
23- (Thanksgiving Eve) mckenzie
24- (Thanksgiving Day)
26-
27-
